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Follow up … Do I laugh or Cry?!?!

I know the post “Do I laugh or do I cry” was pretty charged and in many ways could amount to more of a rant rather then anything overly constructive with the exception of the idea that others can see copies of scanned documents I received I have to say there is a lot wrong with that particular post despite being based on the information I had at the time I wrote it.

Some thingsa I feel I need to clear up…

In the other post I said something about hoping that our state government doesn’t vote for a raise for themselves in light of the cost of living decrease they handed to folks on SSI.  In light of being in contact with a state representative, it is my understanding that the legislatures did NOT get an increase in their income this last time.

I also feel like I need to clarify that I personally don’t expect an increase in my Social Security benefits every year, and do understand that the economy hasn’t been too good in recent times.  I would have been mopre accepting if I had been told that my benefits would be frozen at their current amount until the economy improves, as opposed to having them decreased.  I don’t know numbers or anything to back this up, but I suspect there are others out there who hoped for an increase, but would have been understanding if they were told there wouldn’t be an increase and that benefit amounts were frozen.

For me personally, I think the thing that frustrated me the most, is that I was told by Social Security I qualified for “X” amount of dollars in benefits, and then to have the State decide to decrease that amount, despite the fact that I hadn’t had any changes such as a job, birth of a child, marriage, divorse or any of the other things that can effect my benefits, I felt like I was being told yes I qualify for a certain amount, but the state wasn’t going to hold up their end of what on some level has the appearance of a contract based on my qualifications for the benefits.  My understanding had been that as long as I met the qualifications, and I reported any changes in regards to other income or  things like marriages, divorce, birth whatever, I would be receiving a certain ammount that wouldn’t decrease unless something on my end changed.  that is pretty much how Social Security portrays the benefits to people receiving them, I never once was told that my benefits could go down because of decisions made by my state or federal government.  In light of this, I would like to ask that Social Security at both the state and federal levels, better inform those receiving Social Security benefits that it is possible for the government to decrease benefit amounts without notice, based on what the government feels is best rather then them looking to see what the actual impact could be beyond the actual budget they are working on.  With something like Social Security, politicians and the general public need to realize that while it looks like just numbers on paper, behind every single number on that paper, is a life that will be impacted in some way by the decisions made about the numbers.  For folks who live below the poverty level, a change of $5 can be huge in terms of being able to meet basic needs like food, shelter, clothing, and for those who do try to work or are even in the process of going to college in an attempt to better themselves and gain skills that might make them more employable, the $5 decrease that PA State Government decided on, could mean the difference between being able to have money to pay for tranportation to get to class or work, so while I keep hearing about programs like “Ticket to work” or “Welfare to work” personally I find that decisions such as the one made by the PA state government to decrease benefits is pretty much counter productive for those trying to make an effort.  We are told we can keep our helth coverage for “X” amopunt of time while we work even if we don’t qualify for Social Security, but then if we don’t have the skills to get a job where the employer offers health insurance comparable to what we had, it puts us in a position where we have to choose between paying rent or paying for healthcare, and many will choose things like food, rent, transportation, and clothing over medication if put in that position.  For folks with mental health disabilities, putting us in a position like that can result in us not getting the medication we need to remain stable enough to continue to work, and result in us having to quit working and go back on Social Security or other benefits just so we can once again stabilize our disabling mental health issues.  For someone with a severe and disabling mental illness, it can take several years for them to stabilize enough to where they are able to return to work, but then they are risking putting themself back into a situation where they once again have to choose pretty much between sanity and insanity because of a high potential for not having access to health care coverage to prevent having to choose between medication and a basic necesity like food, clothing or shelter.  It’s a viscious circle and I know based on experience that there are people out ther who believe that if everyone on social security or welfare simply “got a job” everything would be better, but I have to ask these people are they saying it would be better for the individual being told to get a job?  or would it be better for the person making or implying such statements who obviously have no clue what life with a disability of any kind is like.  For me personally to be able to work I would need a guarantee that I would have adaquate health care coverage that was compareable to my current coverage with coverage for my mental health treatment being treated equal to the treatment avaiable to someone with a medical condition such as diabetes, which I have been told for years that for me, taking my meds is as important as insulin is to a diabetic, but yet I’m told that unlike the diabetic, if I’m working, heath insurance isn’t required to give me the same coverage for my medications and other vital treatment as a diabetic would be entitled to with the same health care coverage.

No, I don’t have a degree that I can say backs up anything I’m expressing, but I can say I have life experience that has taught me that because my disability is a mental health disability, I’m better off not working then I am to attempt to work.  Society through their policies has taught me that, but given a chance to work at a job that was friendly to my mental health disability and provided me with insurance compareable to what I have now, I would make an honest effort to try to work at least part-time.  Until I find that combination, I will do what I can to give back to society through my limited freelance writing, and other odd jobs I sometimes do mostly on a volunteer basis, just so I can feel like I’m making an effort to be productive in some way regardless of the views held by those who would claim I’m freeloading.

So while this may be in some ways, yet another rant, I hope that people will be more aware of the viscious circle that folks like me end up in because of society’s view of us and the fact that I believe that many, not all, but many politicians forget that there are lives that will be impacticted by changes made to the numbers they are juggling when balancing budgets.  I feel that special interest typ projects that by design will only impact an individual community, such as funding for stadiums for example should be where cuts should be made, not because stauims don’t serve a purpose, but because people can live without a stadium, they can’t live without food.

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One Response

  1. Great article – Thanks for posting

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